Family Support

Stroke Carers and Family Support Service

Having someone to talk to who understands the impact of stroke helps people to cope with the long-term effects of stroke.  Stroke survivors and carers can be enabled to rebuild their confidence and empowered to look ahead to a new future.  Carers often need ongoing support after hospital discharge, particularly the need for a point of contact with services after the stroke survivor no longer receives therapy input.

This is especially important for those who do not have access to social services input, as they can often feel abandoned and alone with the aftermath of stroke. Our services offer a warm, welcoming unbiased and confidential environment in which to talk.

Each situation is unique but all family carers have a range of constantly changing needs as time goes by – needs that continue after health and social services withdraw from the situation.

Carers report several needs which relate to the following areas:

 

  • Information
  • Hope
  • Support
  • Coping
  • Recognition of their role
  • Skills
  • Confidence
  • Help
  • Insight into home caring
  • Carers assessment
  • Respite care
  • Social
  • Financial
  • Quality of life

Information can be a priority for family carers and this need changes over time and according to the role family carers adopt in caregiving.  In preparation for discharge home family carers need to know what to look for when giving care and how to access services if they need advice or support to care for the stroke survivor.

Stroke carers have both emotional and physical support needs that result from the cumulative effect of stress because they have to adopt many new roles after stroke.  These support needs are ongoing and probably extend beyond the time when services discontinue.  Carers vary with regard to the degree and type of support that they need.

Referrals to the service can be done at any time post stroke by individuals, health professionals and other agencies.

Why people need support:

What can impact on family life:

  • Stroke affects all family members, particulary the main carer. A change in one member of the family affects every other member.
  • Carers often get forgotten as all of the attention is on the recovery of the stroke survivor.
  • Families are often unprepared to deal with cognitive, emotional and behavioural effects of stroke.
  • Financial changes can often have a devastating effect on a working family.
  • Hidden disabilities often cause distress, especially when behaviour is variable and impossible to predict.
  • Psychosocial problems can often mean carers have to face negative reactions of others, increasing social isolation.
  • Issues that affect family and relationships after a stroke sre not confiend to peopel whose initial strokes are dramaitc and severe.
  • Loss of a previous life and a different future can be profound qnd the grieving process can be long and often chronic.
  • Quality of life changes dramatically, the health and psychological well being of the main carer can be compromised.

 

ONE STROKE, TWO SURVIVORS

 

Office: 85 Frinton Road, Holland on Sea, Essex CO15 5UH. Tel: 01255 815905 e-mail: info@tendringstroke.org.uk
Charity Number: 1054049 All rights reserved. Website by Easytigernet